While Hubby's Away...

I travel a lot more than my husband.  I used to travel a lot more for work and still have a couple overnighters throughout the year plus I go away with friends/family a couple of times.  My husband rarely travels without me but he has done one weekend trip a year for the last 3-4 years.  One.  Why is this important?  Because it’s the only time I get the house to myself for an extended period of time.  I get so excited because as much I love my husband, a couple of days to myself is heaven on earth. 

I do feel slightly guilty because I don’t hide my excitement and he knows I am looking forward to the time alone but who doesn’t?  If he traveled a lot it would be a different story – I miss him tons when I am away – but he doesn’t so I am going to thoroughly enjoy and take advantage of my alone time.

What do I have planned for this weekend?  Not a whole lot actually because I don’t really want to leave the house – I save that for weekends we're both home ;)

1. Wine. This is a given and has a presence every weekend but I have been looking forward to it all week… plus one of my hubby’s clients gave him a bottle of wine and he suggested I drink it tonight this weekend.  Done!

2. Pitch Perfect.  On repeat.  And the songs on three, four or five ‘peat with me singing along. And Bridesmaids… and all the cheesy girly shows I have saved up on the DVR.

P.S. - can’t wait for May!!

3. Naps.  Not that I don’t occasionally nap on the weekends but I feel way less guilty about it if no one knows when and how often.

4. Decorating for Christmas.  We agreed to decorate for the weekend of December 6-7th but we didn’t specify if that was inside, outside or both.  So I’m going with outside and plan to start getting festive inside (how could I not with all the instagramming and blog posts throwing it in my face) right after I spend my lunch break at Target.  I already have a couple things hiding in my car from yesterday’s break #sorrynotsorry.

5. DIY project.  I got this mini bench seat at a garage sale a couple months ago and want to paint it, recover the seat - basically give it a lot of TLC - and find a basket that fits underneath.  I'll probably also visit my stepdad to give it a structural upgrade.  Its home is beside our front door and we currently have a bunch of shoes piled on the bottom shelf… definitely need a basket.  Our living room colours are mainly greens and dark brown so am trying to figure out what colour will work best (a dark gray?) and then I will raid my mom’s fabric collection for a coordinating piece to cover the top with.  Fingers crossed my vision translates to real life!



What else should I get up to this weekend?

 

Linking up  with Karli and Amy, and Leslie from A Blonde Ambition, plus the original 5 on Friday ladies: Darci, Christina, Natasha and Liz.

 

 



 

 

 

 

One Step Closer...

We got some pretty good news this week but before I tell you about that I need to back up a little bit.  I haven't written much about my husband and how we met (even though it's a pretty cute story, well at least I think so) and there is no real reason why, I just haven't.  But that also means I have to backtrack a little bit so please bear with me...
Something pretty big happened four months after my husband and I met.  He was diagnosed with LCHAD deficiency, a rare condition that basically means that his body can't process most fats.  And yes, it's very odd that he wasn't diagnosed until the age of 29. While leading a fairly normal life, every couple of years he would end up on the couch for a 2-3 days while his whole body hurt, something he attributed to pulled muscles or just over-exerting himself.  Now we know that he was actually experiencing rhabdomyolysis, where his body was essentially attacking itself.  No one understands why it would just go away and of course he never voluntarily went to the doctor to get himself checked out.
So about two months before we met, he had another 'episode' except this time, his urine was a dark brown (sorry if TMI!) and so he asked his best friend's wife who was in school to become a pharmacist if this was something he should be concerned about.  Um ya think?  She convinced him to go to the medical clinic, they did some blood tests and sent him home to wait for the results.  And then they called and told him to go straight to the ER.  My soon-to-be new boyfriend was almost in kidney failure.  
They stabilized his kidneys, he was poked and prodded for a couple days and they brought in a few batches of medical students to witness this medical mystery.  They had no clue what was wrong with him.  I guess they somehow figured out that it was some sort of metabolic disease (I wonder if it was a real-life Dr. House who cracked the code??) and they ended up basically taking a small chunk of tissue from his arm and sending it off for testing.  He was assigned to a Metabolic Specialist and sent home with a list of instructions on how to change his life until the results came back.
The tissue sample ended up in Switzerland it took 6 months to diagnose.  And I was with him at the appointment with his specialist when he received the official diagnosis and for the next 4 hours after that as we met with a nutritionist, a nurse and a couple other medical people who did something... medical.  Sorry, it was a lot to take in at that time.  And now we know.  And we are figuring out how to live with it and so are his doctors because he is the only person in this area who has it.  The main things we have to watch are his diet (he is only allowed 30g of fat a day), his meal intake (because he has to constantly eat and not 'starve' his body) and he can't over exert himself, which is important because he owns a landscaping business which is obviously a very physical job but he really enjoys it.  So we always have food in the house, he is always hungry, carbs are actually good for him (awesome she types sarcastically) but he has not had any rhabdomyolysis episodes since his diagnosis.
So life is actually pretty normal and to look at the guy you would never know anything is wrong with him.  Every six months or so he meets with his specialist and once a year he has all his major organs tested to see if there is any deterioration.  I think we're very lucky because the only real issue he has is a lack of sensation in his hands and feet.  He has absolutely no reflexes, no one has ever been able to make his leg kick out.  So I admit that I don't think about it a lot, he's just my hubby.

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Then a couple months ago when he was scheduling his appointments, he told me that they wanted me to come and for us to meet with a genetics counsellor.  Makes sense, we are married now and we want to have kids (well I want one kid...) and I figured it was fairly routine.  But actually meeting with the genetics counsellor and talking about what could happen if I am a carrier was hard. And emotional.  And I remembered when we got my husband's diagnosis they told us not to google it because a lot of the babies that are born with LCHAD don't survive.  Heartbreaking.  But in reality, there is such a low chance that I have gene... but there is still that chance.
So they tell us that I can get a blood test, have my HADHA gene mapped and find out if I'm a carrier. For $1000.  They tell us that they will ask the government to cover the cost but there is essentially a 0% chance they will and if we want the test we will likely have to pay for it ourselves.  But they warn us multiple times that the government never covers this sort of thing. This was a hard discussion for my husband and me because my thought was the chance is so low that I'm a carrier but also, I want our baby (eventually) so don't really care if I am.  My husband was adamant that I take the blood test, he wants to know what we are facing.  We decided to wait and see what the response was from the application and then decide.
I got the call on Monday that "against all odds" the cost for the blood test is being covered.  Yay!! Happy dance!!  So in 6-8 weeks we will have a definitive answer.  Without spending $1000! Not that I think it will really change anything but I think it will give us, especially my husband, peace of mind.
I realized that day that we are very lucky.  For the most part my husband is healthy and LCHAD doesn't affect his day to day life if we manage it properly.  But it also scared me.  What about the first time his echocardiogram shows something irregular?  Or if his kidneys fail?  Because LCHAD is so rare his doctors have no idea what our future looks like.  So I just have to keep moving forward and do what I can to help manage his health.  And maybe one day soon we can start planning for baby :)      

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Have any of you heard of LCHAD or know someone who has it?  It might be nice to share this journey on stops along the way.  

How Should I Punish Him?

I love being married to my best friend.  My husband loves me and makes me laugh and texts me throughout the day to let me know he's thinking about me.  But every once in a while I want to shake him and ask WTF?

 

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My husband has a seasonal company and March through November he works his ass off, even working a few hours on Saturdays most weekends, and he still works December through February but usually 2-3 days a week.  While I am obviously jealous and would love slack hours through winter (although I would not work weekends in the summer!!) he gets very bored and impatient and wants to be working.  But the fact is he's not busy right now.  

So this past Sunday I spent the afternoon doing laundry, cleaning up the kitchen, prepping dinner for Monday night and getting everything organized so Monday wouldn't be so stressful.  I folded all the clean laundry and packed it up in the basket to be brought up on Monday because I was just too damn lazy to deal with it that night.

I got up on Monday, fed the furbies, turned on the dishwasher and headed to work.  Hubby has the day off.  He advises me he found a new talk show (the Chew?) and is having a pretty chill day.  Now I didn't expect anything but I kind of assumed - and this is obviously where I went wrong - that he would do a couple things seeing as he was home and I worked all day. Nope!  I got home to find the laundry basket still sitting in front of the stairs, the dishwasher clean and full (with a pile of dirty dishes stacked neatly next to it) and no evidence of dinner being started - which included turning on the oven and inserting the dish?!  

I was pretty shocked. But I didn't say anything.  Because I don't know if I should?  We have our "duties" divided as in-house and out-house, and trade off for meals throughout the week.  We also have a cleaning come every two weeks to do a thorough clean.  I clean up the kitchen in the evening, load and empty the dishwasher, do the laundry, etc. and he takes out the garbage and recycling and takes care of whatever needs to be done with the lawn, gardens, etc.  So everything he didn't do were technically all my responsibility, but wouldn't it be nice to help out your partner when you have all the time in the world?  Am I being selfish?  It's not like I would head out and mow the lawn if he was stuck working all weekend, it would just wait until he had time.  

How would you feel if it were you?  Do I let him enjoy his lazy time or do subtly punish him until he sees the error of his ways?